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Celiac disease
About 25 years ago my husband developed a rash. It was mainly around his joints and pressure points on his body. The small blisters would pop up and then burst, leaving a small open sore. We found a great dermatologist and he diagnosed dermatitis herpetiformis (DH)--something we had never heard of. It was considered very rare. The only "cure" was a gluten-free diet. In the meantime he prescribed sulfapyradene to help with the healing. The only problem there was that it was a drug only available through a medical trial and was very hard to get. First he had to be accepted into the trial and then get the sulfa through the dermatologist. Finally the drug was available to us and my husband started taking it, but needed bloodwork every so often. The gluten-free diet, however, had it's problems. Husband didn't want to give up his gluten--which was and still is pretty much in EVERYTHING. Malt flavoring, oats, wheat, barley, rye, spelt sneak into most American foods. And some things don't have the ingredients, but are cross-contaminated by the equipment on which they're manufactured. At this time there were very few gluten-free foods available. I had to give up making my own bread, biscuits and pastries until I found Bette Hagman's cook book. She recently passed away, but she left many wonderful recipes for us. Thank you Bette. A couple of years later my 8-year-old son developed a rash. Our family doctor said it was impetigo and ordered antibiotics. They were not only ineffective, he developed an allergy to them. After the second try with a different antibiotic had no effect I took him to our dermatologist. "Do you know what this looks like?" he said. I nodded and he told me to put Son on a strict gluten-free diet and gave him some sulfapyradene. Son improved almost immediately. I got a computer and began researching the gluten-free diet intently online. The more I read, the more I saw my symptoms under Celiac Disease. I had been tired, weak, and anemic with terrible cramps and bowel problems. I too went on the gluten-free diet and my life changed drastically. Once thought to be rare in the US, this disease (or, rather, a condition) is being diagnosed more and more. I know several Celiac people in my small area. I've had numerous calls from frantic mothers wanting to find a way to feed their Celiac kids. The diet isn't hard when you learn to read every label. And legislation has been passed to put allergy information on all food. Most restaurants have a gluten-free selection even though is isn't always listed on the menu. Simple (plain) home cooking is always best. Nothing breaded. No malted milk. And beware cross contamination in fast food places. Celiac and DH are good diseases to have. If you stick to the gluten-free diet you need no medicine and your life will change immediately for the better. You can do it! |
Celiac Disease and Gluten-free Diet
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This intel was contributed by dcruey
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May, 2012
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